Respiratory management of the infant with type 1 spinal muscular atrophy.

  title={Respiratory management of the infant with type 1 spinal muscular atrophy.},
  author={Andrew Bush and Jill Fraser and Ellen Jardine and James Paton and Anita Simonds and Chris Wallis},
  journal={Archives of disease in childhood},
  volume={90 7},
A recent paper has highlighted the differences in the respiratory management offered to infants with type 1 spinal muscular atrophy (SMA-1). Current views appear polarised between those who would offer nothing, to those who would proceed as far even as tracheostomy and long term invasive ventilation for these infants. Here we offer a personal view, as a possible template for managing a vexed and emotional problem. The complex non-respiratory aspects of the holistic care of these infants will… CONTINUE READING


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