Research priorities of patients with neuromuscular disease.

  title={Research priorities of patients with neuromuscular disease.},
  author={Christi J Nierse and Tineke Abma and Anja M. C. Horemans and Baziel G. M. van Engelen},
  journal={Disability and rehabilitation},
  volume={35 5},
PURPOSE This paper describes a study in which patients with neuromuscular disease (NMD) were engaged to list top-priorities for scientific research in order to complement the researchers' agenda. METHOD A dialogic model for research agenda setting was used. Interviews, focus groups and expert meetings with patients were held to identify research topics… CONTINUE READING