Research Ethics in the MySpace Era

@article{Moreno2008ResearchEI,
  title={Research Ethics in the MySpace Era},
  author={Megan Andreas Moreno and Norman Fost and Dimitri A. Christakis},
  journal={Pediatrics},
  year={2008},
  volume={121},
  pages={157 - 161}
}
Social networking web sites are popular among adolescents and may represent a new venue for conducting adolescent health research. Conducting research by using social networking web sites raises several concerns, including the social value of this research, fair subject selection, confidentiality, privacy, and informed consent. Addressing each of these concerns, we offer an ethical framework to promote informed and appropriate decisions. 
View on AAP
ncbi.nlm.nih.gov
124 Citations
Background Citations
23
Methods Citations
1
Results Citations
1

124 Citations

Ethics and online social network research – developing best practices
TLDR
Some of the potential ethical concerns of social network sites are outlined, the efforts to develop best practices are described, and efforts to help with outstanding challenges are described.
Exploring Ethical and Methodological Issues in Internet-Based Research with Adolescents
Internet-based research is a relatively new and growing field that presents a number of ethical challenges regarding privacy, confidentiality, and informed consent. In light of a study examining…
The Association Between Age and Ethics-Related Issues in Using Social Media for HIV Prevention in Peru
TLDR
It is found that, compared to younger participants, older participants were more likely to express higher levels of understanding of the consent form and trust that other participants were real and be less likely to benefit from learning about their HIV status.
Consent in Cyberspace
TLDR
Ethical issues surrounding young people’s consent in cyber research are investigated, issues that help determine whether consent is needed are identified, suggestions for dealing with consent in cyberspace are offered and the call for a resource of case studies is added.
Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment
TLDR
A critical reflection of the perceived privacy risks associated with the social media recruitment strategy and the appropriateness of the risk mitigation strategies that were employed are provided.
Utilizing Social Networking Sites to Promote Adolescents’ Health: A Pragmatic Review of the Literature
TLDR
The strengths, weaknesses, and best practices of utilizing Facebook in adolescent health promotion and research are examined via pragmatic literature review to examine how sites can facilitate ethically sound healthcare for adolescents, particularly at-risk youth.
Ethical, Legal, and Methodological Considerations in Cyber Research: Conducting a Cyber Ethnography of www.bullying.org
As Lee (2013) points out in Facebook Nation, we live in an age of “total information awareness.” With Google Street View, MySpace, YouTube, Facebook, Twitter, WikiLeaks, and recent revelations by…
Attitudes and Knowledge of Adolescents in Jordan Regarding the Ethics of Social Media Data Use for Research Purposes
TLDR
It is suggested that adolescents in Jordan understood most of the ethical aspects related to the utilization of their data from social media websites for research studies.
Ethics of Social Media Research: Common Concerns and Practical Considerations
TLDR
The common risks inherent in social media research are reviewed and how researchers can consider these risks when writing research protocols are considered, to provide a detailed examination of relevant ethics and regulatory issues for both researchers and those who review their protocols.
Ethical considerations in the study of online illness narratives: a qualitative review.
TLDR
The personal and sensitive nature of online illness narratives demand their consideration in health care as 'human subjects' research, and three main approaches to ethical conduct in Internet research on illness experiences were found.
...
...

References

SHOWING 1-10 OF 45 REFERENCES
Social networking websites and teens: an overview
In the past five years, social networking sites have rocketed from a niche activity into a phenomenon that engages tens of millions of internet users. More than half of all online American youths…
Personal information of adolescents on the Internet: A quantitative content analysis of MySpace.
Internet Accessibility and Usage among Urban Adolescents in Southern California: Implications for Web-Based Health Research
TLDR
The Internet is already a potential venue for large scale health communication studies, and adolescents with more psychosocial risk factors or detrimental health behaviors were more likely to use the Internet, if used properly.
What are adolescents showing the world about their health risk behaviors on MySpace?
TLDR
Most 16- and 17-year-old MySpace profiles include identifiable information, are frequently accessed by owners, and half include personal risk behavior information.
Forgone health care among U.S. adolescents: associations between risk characteristics and confidentiality concern.
Methamphetamine use among young adults: health and social consequences.
Problem behaviors in adolescents.
A fifth or more of a nationally representative sample of school-attending adolescents report engaging in problem behaviors such as skipping school, using alcohol, fighting, shoplifting, and stealing.…
Internet-initiated sex crimes against minors: implications for prevention based on findings from a national study.
Does substance use moderate the effects of parents and peers on risky sexual behaviour?
TLDR
Substance use did not moderate the relationship between adolescent disposition and risky sex, and peer influence and parental permissiveness were linked to risky sex but only for teens who reported using drugs/alcohol.
Primary Care for Urban Adolescent Girls from Ethnically Diverse Populations: Foregone Care and Access to Confidential Care
TLDR
Setting of usual care and primary care use is described, and predictors of foregone care and experience of confidential care in a primarily racial/ethnic minority low-income sample of 9th–12th grade girls are identified, to ensure access to and quality of care for diverse populations.
...
...