Rare diseases epidemiology research.

  title={Rare diseases epidemiology research.},
  author={Manuel Posada de la Paz and Ana Villaverde-Hueso and Ver{\'o}nica Alonso and S{\'a}ndor J{\'a}nos and Oscar Zurriaga and Marina Poll{\'a}n and Ignacio Abaitua-Borda},
  journal={Advances in experimental medicine and biology},
Rare Diseases Epidemiology is a novel action field still largely unexplored. However, Rare Diseases is a topic of growing interest at world level. The aims of this chapter are to revise useful epidemiological tools and define areas where epidemiology can help improve the rare disease knowledge, and facilitate policy decisions taking into account the real burden of rare diseases in society. This chapter also seeks to describe: the problems of coding and classification of diseases, measuring… CONTINUE READING

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