Quantifying the burden of disease and perceived health state in patients with hereditary angioedema in Sweden.

@article{Nordenfelt2014QuantifyingTB,
  title={Quantifying the burden of disease and perceived health state in patients with hereditary angioedema in Sweden.},
  author={Patrik Nordenfelt and Simon Dawson and C. -F. Wahlgren and Anders Lindfors and Lotus Mallbris and Janne Bj{\"o}rkander},
  journal={Allergy and asthma proceedings},
  year={2014},
  volume={35 2},
  pages={185-90}
}
Hereditary angioedema (HAE) due to C1 inhibitor deficiency is a rare disease characterized by attacks of edema, known to impact quality of life (QoL). This study investigates the burden of HAE in Swedish patients, both children and adults. We used a retrospective registry study of Swedish patients with HAE, captured by the Sweha-Reg census. Data were collected using a paper-based survey. Patients completed EuroQoL 5 Dimensions 5 Levels (EQ5D-5L) questionnaires for both the attack-free state… CONTINUE READING

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