Quality of Life and Participation in the Daily Life (Activities) of Adults with Pompe Disease Receiving Enzyme Replacement Therapy: 10 Years of International Follow-Up.

@article{Gngr2015QualityOL,
  title={Quality of Life and Participation in the Daily Life (Activities) of Adults with Pompe Disease Receiving Enzyme Replacement Therapy: 10 Years of International Follow-Up.},
  author={Deniz G{\"u}ng{\"o}r and M E Kruijshaar and Iris Plug and Dimitris Rizopoulos and T A Kanters and Stephan C. A. Wens and Arnold J. J. Reuser and Pieter Antoon van Doorn and Ans T van der Ploeg},
  journal={Journal of neuromuscular diseases},
  year={2015},
  volume={2 s1},
  pages={
          S63
        }
}
Responses were available for 174 adult patients. In the periods before and after the start of ERT, the median follow-up times were 4 years each (range 0.5– 8). The SF-36 Physical Component Summary measure (PCS) deteriorated before ERT (−0.73 score Quality of Life and Participation in the Daily Life (Activities) of Adults with Pompe Disease Receiving Enzyme Replacement Therapy: 10 Years of International Follow-Up 

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