Psychosocial registry for persons with cancer: a method of facilitating quality of life and symptom research.

@article{Daly2007PsychosocialRF,
  title={Psychosocial registry for persons with cancer: a method of facilitating quality of life and symptom research.},
  author={Barbara J. Daly and Sara L Douglas and Helen B Foley and Amy R Lipson and Chiou-Fang Emily Liou and Karen F Bowman and Donna M Kwilosz and Siran M Koroukian and Elizabeth O'toole and Kathleen T Smyth and Aloen L Townsend and Vivian Vongruenigen and Julia M. Rose},
  journal={Psycho-oncology},
  year={2007},
  volume={16 4},
  pages={358-64}
}
Research focused on the psychosocial aspects of the experience of persons with cancer and their family caregivers is hampered by the methodological challenges inherent in quality of life research. A data registry offers a potential solution to many of these problems in providing a large, comprehensive database, using standardized instruments. We report here our preliminary experience with establishing a Psychosocial Registry designed to advance research in the psychological, social, and… CONTINUE READING