Psychosocial factors in low-incidence genetic disease: the case of osteogenesis imperfecta.

Abstract

Osteogenesis imperfecta (OI), a dominant genetic disorder, was examined in an exploratory case study of psychosocial implications. The cross-sectional survey sample consisted of 13 OI-affected adults and 21 families with an OI-affected child who were interviewed. Findings revealed numerous psychosocial concerns and problems in addition to their complex and… (More)

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@article{Kiely1976PsychosocialFI, title={Psychosocial factors in low-incidence genetic disease: the case of osteogenesis imperfecta.}, author={Laura Kiely and R E Sterne and C J Witkop}, journal={Social work in health care}, year={1976}, volume={1 4}, pages={409-20} }