Privacy and confidentiality of genetic information: what rules for the new science?

@article{Anderlik2001PrivacyAC,
  title={Privacy and confidentiality of genetic information: what rules for the new science?},
  author={Mary R. Anderlik and Mark a. Rothstein},
  journal={Annual review of genomics and human genetics},
  year={2001},
  volume={2},
  pages={401-33}
}
This review covers the ethical, legal, and policy issues associated with the generation and dissemination of genetic information. First, conceptual issues, such as the definition of terms and the description of two modes of analysis, are addressed. Research findings on public attitudes toward privacy and genetics and other factors relevant to policy making are also reviewed. Second, the example of genetic research is used to highlight the importance of attention to the intrinsic harms… CONTINUE READING