Predictive testing for Huntington's disease: a challenge for persons at risk and for professionals.

@article{EversKiebooms1998PredictiveTF,
  title={Predictive testing for Huntington's disease: a challenge for persons at risk and for professionals.},
  author={Gerry Evers-Kiebooms and Marleen Decruyenaere},
  journal={Patient education and counseling},
  year={1998},
  volume={35 1},
  pages={
          15-26
        }
}
About a decade ago the introduction of predictive testing for Huntington's disease (HD) was an important milestone in medical history. The aim of the present paper concerning predictive DNA-testing for HD is fourfold. First of all it describes the professional challenge of elaborating an adequate test protocol and of permanently using a multidisciplinary approach to deal with predictive test requests. Secondly the paper is aimed at unraveling the factors that play a part in uptake and decision… CONTINUE READING
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