Predictive testing for Huntington's disease: I. Predictors of uptake in South Wales.

@article{Binedell1998PredictiveTF,
  title={Predictive testing for Huntington's disease: I. Predictors of uptake in South Wales.},
  author={Julia Binedell and Jo R. Soldan and P S Harper},
  journal={Clinical genetics},
  year={1998},
  volume={54 6},
  pages={477-88}
}
In Wales, predictive testing for Huntington's disease (HD) has not been offered proactively to families and uptake of testing is low in comparison to other centres. Little is known of those not requesting testing, particularly those not in direct contact with the genetics service. This study examined differences between a cohort of 22 test applicants and a random group of 32 'non-requesters', drawn from the South Wales HD register. Respondents were interviewed by means of a semi-structured… CONTINUE READING

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