Practice Guidelines for Communicating a Prenatal or Postnatal Diagnosis of Down Syndrome: Recommendations of the National Society of Genetic Counselors

@article{Sheets2011PracticeGF,
  title={Practice Guidelines for Communicating a Prenatal or Postnatal Diagnosis of Down Syndrome: Recommendations of the National Society of Genetic Counselors},
  author={Kathryn B. Sheets and Blythe G. Crissman and Cori D. Feist and Susan L. Sell and L R Johnson and Kelly C. Donahue and Diane Masser-Frye and G S Brookshire and Amanda Carr{\'e} and Danielle Lagrave and Campbell K. Brasington},
  journal={Journal of Genetic Counseling},
  year={2011},
  volume={20},
  pages={432-441}
}
Down syndrome is one of the most common conditions encountered in the genetics clinic. Due to improvements in healthcare, educational opportunities, and community inclusion over the past 30 years, the life expectancy and quality of life for individuals with Down syndrome have significantly improved. As prenatal screening and diagnostic techniques have become more enhanced and widely available, genetic counselors can expect to frequently provide information and support following a new diagnosis… 
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Balancing clinical information with other aspects of the condition, as well as a better understanding of the information parents consider most important, may enable healthcare professionals to more effectively satisfy families' informational needs following a new diagnosis of Down syndrome.
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TLDR
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