Planning a Patient-Centered Parkinson's Disease Support Program: Insights from Narrative Medicine

@inproceedings{Gross2014PlanningAP,
  title={Planning a Patient-Centered Parkinson's Disease Support Program: Insights from Narrative Medicine},
  author={Nancy MacDonald Gross and Melissa Nicolas and Susan Neigher and Shannon McPartland and Melvyn P. Heyes and Sandra Wrigley and Roger M. Kurlan},
  year={2014}
}
Background: We desired relevant information from patients with Parkinson’s disease (PD) and their caregivers for help in planning a long-term support program. Methods: We compared 3 ap-proaches: 1) a standard needs assessment questionnaire, the Camberwell assessment of need in the elderly, 2) an open-ended listing of needs, and 3) participation in a narrative medicine program in which health care professionals were involved. Results: On the questionnaire, patients reported physical needs as the… CONTINUE READING
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