Perspectives and Experience of Healthcare Professionals on Diagnosis, Prognosis, and End-of-Life Decision Making in Patients with Disorders of Consciousness

  title={Perspectives and Experience of Healthcare Professionals on Diagnosis, Prognosis, and End-of-Life Decision Making in Patients with Disorders of Consciousness},
  author={Catherine Rodrigue and Richard J. Riopelle and James L. Bernat and Eric Racine},
In the care of patients with disorders of consciousness (DOC), some ethical difficulties stem from the challenges of accurate diagnosis and the uncertainty of prognosis. Current neuroimaging research on these disorders could eventually improve the accuracy of diagnoses and prognoses and therefore change the context of end-of-life decision making. However, the perspective of healthcare professionals on these disorders remains poorly understood and may constitute an obstacle to the integration of… 

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Ethical and Clinical Considerations at the Intersection of Functional Neuroimaging and Disorders of Consciousness.

  • Adrian C. ByramGrace Lee J. Illes
  • Psychology
    Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees
  • 2016
Interviews with professionals whose work is relevant to patients with disorders of consciousness reveal priorities concerning further basic research, legal and policy issues, and clinical considerations.

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Well-Being After Severe Brain Injury: What Counts as Good Recovery?

  • M. GrahamL. Naci
  • Medicine, Psychology
    Cambridge Quarterly of Healthcare Ethics
  • 2021
It is argued that changes in awareness or other function should not be equated to changes in well-being, in the absence of a clear understanding of the constituents ofWell-being for that particular patient, and that a comprehensive conception of recovery for patients with prolonged DOC should incorporate aspects of both experienced well- Being and evaluative well- being.



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