Perception scores of siblings and parents of children with hypoplastic left heart syndrome.

@article{Caris2018PerceptionSO,
  title={Perception scores of siblings and parents of children with hypoplastic left heart syndrome.},
  author={Elizabeth C Caris and Nicole R Dempster and Gil Wernovsky and Yongjie Miao and Melissa Moore-Clingenpeel and Trent Neely and Rachel Cavalcanti Fonseca and Holly Miller-Tate and Robin W. Allen and Samantha Fichtner and Jamie Stewart and Clifford L Cua},
  journal={Congenital heart disease},
  year={2018},
  volume={13 4},
  pages={
          528-532
        }
}
OBJECTIVES Siblings of children with chronic medical conditions endorse a lower quality of life compared to age-matched peers. Caregiver and sibling-self report of adjustment are often discordant. Congenital heart disease significantly affects family life. To date, there have been no studies addressing the functioning of siblings of children with hypoplastic left heart syndrome, one of the most severe forms of congenital heart disease. The goal of this study was to assess the impact of… CONTINUE READING

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