Peering into a Chilean Black Box: Parental Storytelling in Pediatric Genetic Counseling

@article{Ordez2013PeeringIA,
  title={Peering into a Chilean Black Box: Parental Storytelling in Pediatric Genetic Counseling},
  author={Jessica Ord{\'o}{\~n}ez and Sonia B. Margarit and K. J. Downs and Beverly M Yashar},
  journal={Journal of Genetic Counseling},
  year={2013},
  volume={22},
  pages={805-816}
}
While genetic counseling has expanded to multiple international settings, research about providing culturally sensitive services to non-U.S. patients is limited. To gain insights, we utilized a process study to explore parental communication in pediatric genetics clinics in Chile. We utilized a phenomenological hermeneutic approach to assess storytelling in six pediatric sessions that were conducted in Spanish, and translated into English. The majority of the sessions focused on information… CONTINUE READING

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