Patients feeling severely affected by multiple sclerosis: how do patients want to communicate about end-of-life issues?

@article{Buecken2012PatientsFS,
  title={Patients feeling severely affected by multiple sclerosis: how do patients want to communicate about end-of-life issues?},
  author={Raphael Buecken and M. Yu. Galushko and Heidrun Golla and Julia Strupp and Moritz Hahn and Nicole Ernstmann and Holger Pfaff and Raymond Voltz},
  journal={Patient education and counseling},
  year={2012},
  volume={88 2},
  pages={318-24}
}
OBJECTIVE Investigate multiple sclerosis patients' desire to communicate with their physicians about their disease progression and end-of-life issues. METHODS Persons meeting the inclusion criteria of feeling severely affected by MS were invited via the German MS society to complete a needs questionnaire. Replies to questions on physician empathy and wishes about communication regarding disease progression and death and dying were quantitatively analyzed. Endpoints (point 1+2/4+5) of 5-point… CONTINUE READING

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