Patients' and Caregivers' Attitudes toward 'Disorders of Sex Development' Nomenclature.

  title={Patients' and Caregivers' Attitudes toward 'Disorders of Sex Development' Nomenclature.},
  author={Anthony D’Oro and Ilina Rosoklija and Deborah L. Jacobson and Courtney Finlayson and Diane Chen and Duong D. Tu and Paul F. Austin and Lefkothea P Karaviti and Sheila K. Gunn and Leena Nahata and Hillary M. Kapa and Paul Kokorowski and Mimi S. Kim and Alyssa C Messina and Thomas F. Kolon and Elizabeth B. Yerkes and Earl Y. Cheng and Emilie K. Johnson},
  journal={Journal of Urology},
OBJECTIVES Differences/disorders of sex development (DSD) medical terminology has been viewed negatively by some affected individuals. A clinical population of patients with DSD and their caregivers were surveyed regarding DSD nomenclature, hypothesizing that those unaffiliated with support groups would have more favorable attitudes toward DSD nomenclature. METHODS English and Spanish-speaking patients with DSD (age ≥13 years) and their caregivers at 5 national tertiary care clinics were… 

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