Patients, clinicians and open notes: information blocking as a case of epistemic injustice
@article{Blease2021PatientsCA, title={Patients, clinicians and open notes: information blocking as a case of epistemic injustice}, author={Charlotte R Blease and Liz Salmi and Hanife Rexhepi and Maria H{\"a}gglund and Catherine M. DesRoches}, journal={Journal of Medical Ethics}, year={2021} }
In many countries, including patients are legally entitled to request copies of their clinical notes. However, this process remains time-consuming and burdensome, and it remains unclear how much of the medical record must be made available. Online access to notes offers a way to overcome these challenges and in around 10 countries worldwide, via secure web-based portals, many patients are now able to read at least some of the narrative reports written by clinicians (‘open notes’). However, even…
7 Citations
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PAEHRs in MHC may strengthen user involvement, patients' autonomy and shift medical treatment to a co-produced process and identify potential research gaps.
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