Patients' views on identifiability of samples and informed consent for genetic research.

@article{Hull2008PatientsVO,
  title={Patients' views on identifiability of samples and informed consent for genetic research.},
  author={Sara Chandros Hull and Richard R. Sharp and Jeffrey R. Botkin and Mark Brown and Mark T. Hughes and Jeremy Sugarman and Debra A. Schwinn and Pamela Sankar and Dragana Bolcic-Jankovic and Brian R. Clarridge and Benjamin S Wilfond},
  journal={The American journal of bioethics : AJOB},
  year={2008},
  volume={8 10},
  pages={62-70}
}
It is unclear whether the regulatory distinction between non-identifiable and identifiable information--information used to determine informed consent practices for the use of clinically derived samples for genetic research--is meaningful to patients. The objective of this study was to examine patients' attitudes and preferences regarding use of anonymous and identifiable clinical samples for genetic research. Telephone interviews were conducted with 1,193 patients recruited from general… CONTINUE READING

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