Patients' attitudes about autonomy and confidentiality in genetic testing for breast-ovarian cancer susceptibility.

@article{Benkendorf1997PatientsAA,
  title={Patients' attitudes about autonomy and confidentiality in genetic testing for breast-ovarian cancer susceptibility.},
  author={Judith L. Benkendorf and J E Reutenauer and Christine A Hughes and N Eads and J. H. M. Willison and Madison Powers and Caryn Lerman},
  journal={American journal of medical genetics},
  year={1997},
  volume={73 3},
  pages={296-303}
}
The identification of BRCA1 and BRCA2, two breast-ovarian cancer susceptibility genes, has brought many ethical and social issues to the forefront. This paper presents the results of a survey assessing the attitudes of 238 unaffected first-degree relatives of women with breast or ovarian cancer regarding the ethical issues of autonomy and confidentiality as they relate to BRCA1/2 testing. Baseline knowledge about BRCA1/2 and ethnic and psychosocial characteristics of our study population were… CONTINUE READING
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