Patients' Experiences of Being a Burden on Family in Terminal Illness.

  title={Patients' Experiences of Being a Burden on Family in Terminal Illness.},
  author={Julia Overturf Johnson and Daniel P. Sulmasy and Marie T. Nolan},
  journal={Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association},
  volume={9 5},
Studies of persons with chronic and life-threatening illness have revealed a fear of being a burden on family. The purpose of this case study was to explore that concern in-depth in three persons with different terminal illnesses. Participants were part of a larger study of end-of-life decision making and were selected for this study because their illnesses are characterized by a steady decline in health (amyotrophic lateral sclerosis), a rapid decline (stage IV lung cancer), or an uncertain… CONTINUE READING


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