Patient registries: utility, validity and inference.

@article{Richesson2010PatientRU,
  title={Patient registries: utility, validity and inference.},
  author={Rachel L. Richesson and Kendra Vehik},
  journal={Advances in experimental medicine and biology},
  year={2010},
  volume={686},
  pages={
          87-104
        }
}
Patient registries are essential tools for public health surveillance and research inquiry, and are a particularly important resource for understanding rare diseases. Registries provide consistent data for defined populations and can support the study of the distribution and determinants of various diseases. One advantage of registries is the ability to observe caseload and population characteristics over time, which might facilitate the evaluation of disease incidence, disease etiology… CONTINUE READING
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