Patient and public involvement in emergency care research

@article{Hirst2016PatientAP,
  title={Patient and public involvement in emergency care research},
  author={Enid Hirst and Andy Irving and Steve Goodacre},
  journal={Emergency Medicine Journal},
  year={2016},
  volume={33},
  pages={665 - 670}
}
Patients participate in emergency care research and are the intended beneficiaries of research findings. The public provide substantial funding for research through taxation and charitable donations. If we do research to benefit patients and the public are funding the research, then patients and the public should be involved in the planning, prioritisation, design, conduct and oversight of research, yet patient and public involvement (or more simply, public involvement, since patients are also… 
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25 Citations
Background Citations
6
Methods Citations
3

25 Citations

Public involvement in designing a study on patient-witnessed cardiopulmonary resuscitation in hospital.
TLDR
Overall, the study proposed in this consultation was considered relevant and worthy by patients and health care professionals to raise awareness and generate new evidence on an unconsidered aspect of cardiopulmonary resuscitation and of patients' hospital experience.
Pediatric Emergency Research Canada (PERC): Patient/Family‐informed Research Priorities for Pediatric Emergency Medicine
TLDR
This work identifies key priorities for research in PEM and compares results with prior research prioritization initiatives in the emergency department (ED) setting to identify shared research priorities and opportunities for collaboration among PEM research networks.
Recommendations for patient engagement in patient-oriented emergency medicine research.
TLDR
Patient engagement can improve EM research by helping researchers select meaningful outcomes, increase social acceptability of studies, and design knowledge translation strategies that target patients' needs.
An Emergency Medicine Research Priority Setting Partnership to establish the top 10 research priorities in emergency medicine
TLDR
The most important questions facing emergency medicine are established through a priority setting partnership, with the top 10 questions reached through a consensus process discussed.
A coproduced patient and public event: An approach to developing and prioritizing ambulance performance measures
  • A. Irving, J. Turner, A. Siriwardena
  • Medicine, Political Science
    Health expectations : an international journal of public participation in health care and health policy
  • 2018
TLDR
The PPI event described in detail in this article focusses on the process of involving patients and public representatives in identifying, prioritizing and refining a set of outcome measures that can be used to support ambulance service performance measurement.
Evaluating alcohol intoxication management services: the EDARA mixed-methods study
TLDR
Qualitative and ethnographic data indicated that alcohol intoxication management services are acceptable to practitioners and patients and that they address unmet need, and there was evidence that alcohol intoxicated management services improve ambulance response times and reduce emergency department attendance.
Patient perspectives on priorities for emergency medicine research: The PERSPEX study
TLDR
To determine the priorities for emergency medicine research of patients currently in an ED and to compare their priorities with those of ACEM researchers, an apples-to- apples comparison is compared.
Tendency to call an ambulance or attend an emergency department for minor or non-urgent problems: a vignette-based population survey in Britain
TLDR
Whereas use of emergency ambulances for minor or non-urgent problems appeared to be driven by people’s lack of resources, including lack of transport, use of EDs appeared to been driven by their attractive characteristic of offering tests quickly.
Stroke survivors’ priorities for research related to life after stroke
TLDR
Life after stroke is perceived differentely with aging and future research should address strategies to face challenges such as imbalance and walking difficulties and post-stroke-fatigue.
Randomised controlled trials in pre-hospital trauma: a systematic mapping review
TLDR
Evidence from trials in prehospital trauma is sparse and where trials have been completed, the reporting is generally poor and study designs sub-optimal, and there is a continued need for improvement in a setting where high quality evidence has great potential to make a demonstrable impact on care and outcomes.
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References

SHOWING 1-10 OF 33 REFERENCES
The emergency medicine research priority setting partnership
TLDR
Over the coming months, a research priority setting process will take place, to establish what the most important research questions are to clinicians working in the specialty of emergency medicine, and also to the patients the authors serve.
Recruiting to ‘time and target’ in emergency care research
  • T. Coats
  • Political Science, Medicine
    Emergency Medicine Journal
  • 2012
TLDR
Government funding for clinical research in the National Health Service (NHS) is channelled through the various parts of the National Institute for Health Research (NIHR), which has a common objective: increasing efficiency in the delivery of clinical research.
The PAndemic INfluenza Triage in the Emergency Department (PAINTED) pilot cohort study.
TLDR
A standardised clinical assessment form is acceptable to clinicians and could be used to collect research data in an influenza pandemic, but analysis may be limited by missing data.
Why is it so difficult to recruit patients to research in emergency care? Lessons from the AHEAD study
TLDR
Overall recruitment varied widely between sites with an eightfold variation in recruitment rates, but research nurses reported many problems, including site resources, lack of staff engagement and flaws in recruitment strategies, which could be improved.
SERVICE USER PERSPECTIVES ON PATIENT SAFETY IN THE AMBULANCE SERVICE
TLDR
Despite the relatively small number of participants, the findings provide useful service-user perspectives relevant to pre-hospital emergency care policy and practice, as well as the wider urgent and emergency care context.
A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities
TLDR
This is the first international systematic review to focus on the impact of PPI on the people involved in the process, highlighting the importance of optimising the context and processes of involvement, so creating the potential for PPI to impact positively on the research itself.
Hospital characteristics affecting potentially avoidable emergency admissions: National ecological study
TLDR
Avoidable admission rates were higher for hospitals with higher emergency department attendance rates, higher numbers of acute beds per 1000 catchment population and higher conversion rates from emergency department Attendance to admission.
A qualitative study of decision-making and safety in ambulance service transitions
TLDR
Potential system-wide influences on decision-making in the ambulance service setting are qualitatively examined to identify useful areas for future research and intervention and recommend effective ways of providing access to alternative care pathways to accident and emergency.
MODIFIED EARLY WARNING SCORES (MEWS) TO SUPPORT AMBULANCE CLINICIANS' DECISIONS TO TRANSPORT OR TREAT AT HOME
TLDR
MEWS had a minimal effect on transportation or revisit rates and a larger study, ensuring adequate ongoing support, is recommended before implementing MEWS on a wider scale.
Mapping the impact of patient and public involvement on health and social care research: a systematic review
  • J. Brett, S. Staniszewska, R. Suleman
  • Political Science, Medicine
    Health expectations : an international journal of public participation in health care and health policy
  • 2014
There is an increasing international interest in patient and public involvement (PPI) in research, yet relatively little robust evidence exists about its impact on health and social care research.
...
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