Pathways to adult diagnosis of CF: the impact of pre-diagnosis experience on post-diagnosis responses and needs.


This phenomenological study explored the pre-diagnosis experiences of 36 men and women who learned during their adult years that they had cystic fibrosis (CF), a disease usually diagnosed in children. Four mutually-exclusive pathways to diagnosis emerged during data analysis, each determined by the extent to which participants experienced symptoms growing… (More)


  • Presentations referencing similar topics