Participatory research in pediatric palliative care: benefits and challenges.

  title={Participatory research in pediatric palliative care: benefits and challenges.},
  author={Suzanne Mongeau and Manon Champagne and Stephen Liben},
  journal={Journal of palliative care},
  volume={23 1},
Participatory research is an approach wherein all parties concerned play an active role throughout the research process, from initial design to the interpretation and dissemination of results. This article reports on two participatory research projects evaluating a new in-home respite program for children requiring pediatric palliative care and their families. Some of the realities, benefits, and challenges resulting from a participatory approach to research in pediatric palliative care are… CONTINUE READING