Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome.

@article{Minnes2009ParentVO,
  title={Parent views on enhancing the quality of health care for their children with fragile X syndrome, autism or Down syndrome.},
  author={Patricia Minnes and Kathryn Steiner},
  journal={Child: care, health and development},
  year={2009},
  volume={35 2},
  pages={250-6}
}
BACKGROUND International research in recent years has begun to focus on the medical problems of individuals with intellectual disabilities and on family stress in accessing health services for persons with developmental disabilities. Less is known about the needs of individuals in different diagnostic groups, or about their experiences of systems of care. Therefore, we report the results of focus groups with parents of children or adults with fragile X syndrome, autism or Down syndrome… CONTINUE READING