Pacing as a strategy to improve energy management in myalgic encephalomyelitis/chronic fatigue syndrome: a consensus document

@article{Goudsmit2012PacingAA,
  title={Pacing as a strategy to improve energy management in myalgic encephalomyelitis/chronic fatigue syndrome: a consensus document},
  author={Ellen M. Goudsmit and Jo Nijs and Leonard A. Jason and Karen E Wallman},
  journal={Disability and Rehabilitation},
  year={2012},
  volume={34},
  pages={1140 - 1147}
}
Purpose: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition characterized by a number of symptoms which typically worsen following minimal exertion. Various strategies to manage the limited energy levels have been proposed. Of these, pacing has been consistently rated as one of the most helpful in surveys conducted by patient groups. This review is a response to the paucity of the information on pacing in the scientific literature. Method: We describe the… 

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  • Tom Kindlon
  • Medicine, Psychology
    Disability and rehabilitation
  • 2015
The authors posit that the level of supervision may explain the results that are less than satisfactory in patient organisation surveys, and the validity of single-item satisfaction measures, such as used in the PACE Trial, is questionable.
...

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