Pacing as a strategy to improve energy management in myalgic encephalomyelitis/chronic fatigue syndrome: a consensus document

  title={Pacing as a strategy to improve energy management in myalgic encephalomyelitis/chronic fatigue syndrome: a consensus document},
  author={Ellen M. Goudsmit and Jo Nijs and Leonard A. Jason and Karen E Wallman},
  journal={Disability and Rehabilitation},
  pages={1140 - 1147}
Purpose: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition characterized by a number of symptoms which typically worsen following minimal exertion. Various strategies to manage the limited energy levels have been proposed. Of these, pacing has been consistently rated as one of the most helpful in surveys conducted by patient groups. This review is a response to the paucity of the information on pacing in the scientific literature. Method: We describe the… 

Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

A pragmatic clinical approach for these often marginalized patients is described, which is likely to be effective at improving fatigue and, to a lesser extent, physical function in ME/CFS but also safe.

The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering post-exertional malaise: a systematic review and narrative synthesis

There is no scientific evidence when it comes to effective physiotherapy for Me patients, and applying treatment that seems effective for CF or CFS patients may have adverse consequences for ME patients and should be avoided.

Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS): A Patient-Driven Survey

There are unique benefits that can be derived from patients collaborating with researchers in the measurement of key symptoms defining ME and CFS, and critical patient input shapes the item selection and overall design of the tool.

Assessing the Psychometric Properties of an Activity Pacing Questionnaire for Chronic Pain and Fatigue

Developed to be widely used across a heterogeneous group of patients with chronic pain or fatigue, the APQ-26 is multifaceted and demonstrates reliability and validity.

Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

The experience of post–exertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome varies greatly between individuals and leads to a diminished quality of life.

Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective

Recovery from myalgic encephalomyelitis and chronic fatigue syndrome should be viewed as multidimensional, considering patients’ daily life, psychosocial functioning, and overall physical functioning, according to physicians’ views.

Interventions in pediatric chronic fatigue syndrome/myalgic encephalomyelitis: a systematic review.

Elements of rehabilitative strategies associated with negative outcomes in CFS/ME: the need for further investigations

  • Tom Kindlon
  • Medicine, Psychology
    Disability and rehabilitation
  • 2015
The authors posit that the level of supervision may explain the results that are less than satisfactory in patient organisation surveys, and the validity of single-item satisfaction measures, such as used in the PACE Trial, is questionable.



The Energy Envelope Theory and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

  • L. Jason
  • Psychology
    AAOHN journal : official journal of the American Association of Occupational Health Nurses
  • 2008
Support is provided for a strategy health care professionals can use when working with clients with ME/CFS as it was predicted that those participants who expended energy beyond their level of perceived energy would have more severe fatigue and symptoms and lower levels of physical and mental functioning.

Chronic fatigue syndrome: an approach combining self-management with graded exercise to avoid exacerbations.

Using evidence from both the biological and clinical sciences, this paper explains that graded exercise therapy for people with chronic fatigue syndrome can be undertaken safely with no detrimental effects on the immune system.

The Development of a Revised Canadian Myalgic Encephalomyelitis Chronic Fatigue Syndrome Case Definition

Problem statement: Several investigators have indicated that case defi nitions for Chronic Fatigue Syndrome (CFS) are characterized by vaguely worded criteria that lack operational definitions and

Caring for patients with chronic fatigue syndrome

  • S. Straus
  • Medicine, Psychology
    BMJ : British Medical Journal
  • 2002
The working group's report reflects the good efforts of the scholars, practitioners, patients, and advocates who joined to address this complex matter: how one makes the diagnosis of chronic fatigue syndrome; the treatments to consider; and research that remains to be done.

An Etiological Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Kindling might represent a heuristic model for understanding the etiology of Myalgic Encephalomyelitis/chronic fatigue syndrome and may also be responsible for high levels of oxidative stress, which has been found in patients with ME/CFS.

Postexertional malaise in women with chronic fatigue syndrome.

The results of this study suggest that PEM is both a real and an incapacitating condition for women with CFS and that their responses to exercise are distinctively different from those of sedentary controls.

Handbook of Chronic Fatigue Syndrome

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The Chronic Fatigue Syndrome: A Comprehensive Approach to Its Definition and Study

We have developed a conceptual framework and a set of research guidelines for use in studies of the chronic fatigue syndrome. The guidelines cover the clinical and laboratory evaluation of persons

A feasibility study comparing two treatment approaches for chronic fatigue syndrome in adolescents

This study assesses the feasibility of a larger treatment trial comparing the effectiveness of the two current most common treatment approaches and explores the acceptability of treatments and the numbers needed to show a meaningful difference between treatments.