Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients' views.

@article{Payne2007OutcomeMF,
  title={Outcome measures for clinical genetics services: a comparison of genetics healthcare professionals and patients' views.},
  author={Katherine Payne and Stuart G Nicholls and Marion McAllister and Rhona Macleod and Ian Ellis and Dian Donnai and Linda Davies},
  journal={Health policy},
  year={2007},
  volume={84 1},
  pages={112-22}
}
OBJECTIVES To explore genetics professionals' and patients' views about which outcome domains are most appropriate to measure the patient benefits of using a clinical genetics service. METHODS A postal Delphi survey was sent to: 115 consultant geneticists; 162 genetic counsellors; 156 support group representatives; 106 patients. The survey contained 19 outcome domains and respondents assessed the usefulness of each for clinical genetics services. RESULTS The final professional panel… CONTINUE READING

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