Offering aggregate results to participants in genomic research: opportunities and challenges

@article{Beskow2012OfferingAR,
  title={Offering aggregate results to participants in genomic research: opportunities and challenges},
  author={Laura M. Beskow and Wylie Burke and Stephanie M Fullerton and Richard R. Sharp},
  journal={Genetics in Medicine},
  year={2012},
  volume={14},
  pages={490-496}
}
Although issues involved in offering individual results to participants in genomic research have received considerable attention, communication of aggregate results has been the subject of relatively little ethical analysis. Offering participants aggregate results is typically assumed to be a good thing, and studies have found that a significant majority of biobank research participants, when asked about their interest in aggregate results, say that access to such information would be important… CONTINUE READING
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