National Institutes of Health Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

  title={National Institutes of Health Pathways to Prevention Workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome},
  author={Carmen R. Green and Penney Cowan and Ronit Elk and Kathleen O’neil and Angela L. Rasmussen},
  journal={Annals of Internal Medicine},
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic, complex, multifaceted condition characterized by extreme fatigue and other symptoms, including pain, impaired memory, sleep disturbance, and insomnia that are not improved by rest. Persons with ME/CFS may have substantial disability, and some may even become homebound and bedbound. The cause and pathogenesis remain unknown, and there are no laboratory diagnostic tests or known cures for ME/CFS. One million persons (mostly… 
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Real Illness
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Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) have been the subjects of controversy: from diagnosis and cause to therapies. The disagreement with regard to the diagnosis relates
CDC Grand Rounds: Chronic Fatigue Syndrome - Advancing Research and Clinical Education.
The fatigue in this illness is striking and quite distinct from the common fatigue everyone experiences, and a variety of other names have been used, including myalgic encephalomyelitis (ME), ME/CFS, chronic fatigue immune dysfunction, and most recently, systemic exertion intolerance disease.
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Access to Medical Care for Individuals with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: A Call for Centers of Excellence.
The current study suggested that individuals with ME and CFS represent a medically-underserved population, due to lack of available care, as they would ameliorate geographic and financial barriers to quality care.
An Accurate Diagnosis of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome requires strict Clinical Case definitions and Objective Test Methods
To resolve the diagnostic issues in research studies and clinical practice, a clear distinction between ME and CFS (not ME), based on the original criteria, is crucial.
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Worldwide studies have indicated that when appropriately screened and diagnosed, the incidence rates of Chronic Fatigue Syndrome/Myalgic Encephalitis are similar in the developed countries where it has been studied.