Narrating ethnicity and diversity in Middle Eastern national genome projects

  title={Narrating ethnicity and diversity in Middle Eastern national genome projects},
  author={Elise K Burton},
  journal={Social Studies of Science},
  pages={762 - 786}
  • Elise K Burton
  • Published 2018
  • Geography, Medicine
  • Social Studies of Science
Most Middle Eastern populations outside Israel have not been represented in Western-based international human genome sequencing efforts. In response, national-level projects have emerged throughout the Middle East to decode the Arab, Turkish and Iranian genomes. The discourses surrounding the ‘national genome’ that shape scientists’ representation of their work to local and international audiences evoke three intersecting analytics of nationalism: methodological, postcolonial and diasporic… Expand
3 Citations
Mexican Samples, Latino DNA: The Trajectory of a National Genome in Transnational Science
Experts have widely promoted developing country investment in national genome projects in order to ensure their inclusion in medical genomic advances, to protect their genomes from foreignExpand
Impossible, unknowable, accountable: Dramas and dilemmas of data law
  • A. Cool
  • Political Science, Medicine
  • Social studies of science
  • 2019
Drawing on ethnographic fieldwork with researchers, lawyers and legal scholars in Sweden, it is argued that the GDPR’s flexible accountability principle effectively encourages researchers to reflect on their ethical responsibility but can also become a source of anxiety and produce unexpected results. Expand


Building the genomic nation: ‘Homo Brasilis’ and the ‘Genoma Mexicano’ in comparative cultural perspective
The importance of the nation as a frame for mobilizing genetic data in public policy debates is shown, and how race comes in and out of focus in different Latin American national contexts of genomic research, while never completely disappearing is demonstrated. Expand
Mestizo Genomics: Race Mixture, Nation, and Science in Latin America
In genetics laboratories in Brazil, Colombia and Mexico, scientists have been mapping the genomes of local populations, seeking to locate the genetic basis of complex diseases and trace populationExpand
The substance that empowers? DNA in South Asia
Drawing on two ethnographic examples of the sociocultural aspects of populations genetic research in India, the article explores in what ways tests aimed at assessing ‘genetic differences’ betweenExpand
The politics of genealogical incorporation: ethnic difference, genetic relatedness and national belonging*
ABSTRACT This paper explores the relationship between genomic accounts of ethnic origins and distinctiveness and genealogical models of ethnic and national similarity and difference. It does so byExpand
How to Define a Population: Cultural Politics and Population Genetics in the People's Republic of China and the Republic of China
In this article I maintain that different constellations of political and socio-economic interest groups lead to diverging approaches to defining research targets in population genetics. First, IExpand
“Essential Collaborators”: Locating Middle Eastern Geneticists in the Global Scientific Infrastructure, 1950s–1970s
Abstract In the aftermath of World War II, a new international infrastructure based on United Nations agencies took charge of coordinating global biomedical research. Through this infrastructure,Expand
Biological ancestries, kinship connections, and projected identities in four central Anatolian settlements: insights from culturally contextualized genetic anthropology.
It is concluded that broad, ethnicity-based sampling is inadequate to capture the genetic signatures of recent social and historical dynamics, which have had a profound influence on contemporary genetic and cultural regional diversity. Expand
Minorities in Iran: Nationalism and Ethnicity after Khomeini
For the scholar who approaches the study of contemporary Iran, the issue of ethnicities, minorities or ‘identity’ overall represents a Sisyphean task; the more one dissects the concept, the more theExpand
Race to the Finish: Identity and Governance in an Age of Genomics
In the summer of 1991, population geneticists and evolutionary biologists proposed to archive human genetic diversity by collecting the genomes of "isolated indigenous populations." Their initiative,Expand
“Is Peking Man Still Our Ancestor?”—Genetics, Anthropology, and the Politics of Racial Nationalism in China
In 1993, in response to the international Human Genome Project pioneered by the United States, the Chinese government began to sponsor national projects in conjunction with the international effort.Expand