NIH/NCATS/GRDR® Common Data Elements: A leading force for standardized data collection.

@article{Rubinstein2015NIHNCATSGRDRCD,
  title={NIH/NCATS/GRDR® Common Data Elements: A leading force for standardized data collection.},
  author={Yaffa R Rubinstein and Pamela M McInnes},
  journal={Contemporary clinical trials},
  year={2015},
  volume={42},
  pages={78-80}
}
The main goal of the NIH/NCATS GRDR® program is to serve as a central web-based global data repository to integrate de-identified patient clinical data from rare disease registries, and other data sources, in a standardized manner, to be available to researchers for conducting various biomedical studies, including clinical trials and to support analyses within and across diseases. The aim of the program is to advance research for many rare diseases. One of the first tasks toward achieving this… CONTINUE READING