Moving beyond Consent for Citizen Science in Big Data Health and Medical Research

  title={Moving beyond Consent for Citizen Science in Big Data Health and Medical Research},
  author={Anne S. Y. Cheung},
  journal={BioRN: Public Health (Topic)},
  • A. Cheung
  • Published 29 March 2017
  • Computer Science
  • BioRN: Public Health (Topic)
Consent has been the cornerstone of personal data privacy regime. This notion is premised on the liberal tenets of individual autonomy, freedom of choice and rationality. More important, consent is only meaningful if data subjects are fully informed and parties are of equal bargaining power. Under orthodox framework, it is believed that privacy can be waived by consent. The above concern is particularly pertinent to citizen science in health and medical research, in which the nature of… 

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