Mitochondrial disease patient motivations and barriers to participate in clinical trials

@inproceedings{ZolkipliCunningham2018MitochondrialDP,
  title={Mitochondrial disease patient motivations and barriers to participate in clinical trials},
  author={Zarazuela Zolkipli-Cunningham and Rui Xiao and Amy Stoddart and Elizabeth M. McCormick and Amy Holberts and Natalie Burrill and Shana E McCormack and Lauren J Williams and Xiaoyan Wang and John L. P. Thompson and Marni J. Falk},
  booktitle={PloS one},
  year={2018}
}
BACKGROUND Clinical treatment trials are increasingly being designed in primary mitochondrial disease (PMD), a phenotypically and genetically heterogeneous collection of inherited multi- system energy deficiency disorders that lack effective therapy. We sought to identify motivating factors and barriers to clinical trial participation in PMD. METHODS A… CONTINUE READING