Minimum Data Set for Mass-Gathering Health Research and Evaluation: A Discussion Paper

@article{Ranse2012MinimumDS,
  title={Minimum Data Set for Mass-Gathering Health Research and Evaluation: A Discussion Paper},
  author={Jamie Ranse and Alison Hutton},
  journal={Prehospital and Disaster Medicine},
  year={2012},
  volume={27},
  pages={543 - 550}
}
  • J. Ranse, A. Hutton
  • Published 19 September 2012
  • Medicine
  • Prehospital and Disaster Medicine
Abstract This paper discusses the need for consistency in mass-gathering data collection and biomedical reporting. Mass gatherings occur frequently throughout the world, and having an understanding of the complexities of mass gatherings is important to inform health services about the possible required health resources. Factors within the environmental, psychosocial and biomedical domains influence the usage of health services at mass gatherings. The biomedical domain includes the… 
Environmental Influences on Patient Presentations: Considerations for Research and Evaluation at Mass-Gathering Events
TLDR
In collecting environmental data from mass gatherings, there must be an agreed-upon MDS, and a set of variables can be used to collect de-identified environmental variables for the purpose of making comparisons across societies for mass-gathering events (MGEs).
Rethinking Mass-Gathering Domains for Understanding Patient Presentations: A Discussion Paper
TLDR
The authors propose further evolution of the Arbon model to include the addition of several domains, including: event environment; command, control, and communication (C3); public health; health promotion; and legacy when reporting the health outcomes of an event.
Psychosocial Influences on Patient Presentations: Considerations for Research and Evaluation at Mass-Gathering Events
TLDR
An agreed-upon set of variables that can be used to collect de-identified psychosocial variables for the purpose of making comparisons across societies for mass-gathering events (MGEs) would be invaluable to researchers and event clinicians.
Measuring the Masses: Domains Driving Data Collection and Analysis for the Health Outcomes of Mass Gatherings (Paper 3)
TLDR
A set of domains for data that may support increasingly comprehensive, yet lean, reporting on the health outcomes of MGs are proposed, proposing a set of operationally relevant data domains that apply equally to small, medium, and large-sized events.
Health Service Impact from Mass Gatherings: A Systematic Literature Review
TLDR
A recommendation for future mass-gathering research and evaluation is to link patient-level data from in-event mass gatherings to external health services, to more accurately inform future health planning for mass gatherings across the health care continuum.
Measuring the Masses: The Current State of Mass-Gathering Medical Case Reporting (Paper 1)
TLDR
Heterogeneity is a significant impediment to the functional use of published reports to further the science of MG planning and to improve health outcomes, and future work will aim to align and standardize reporting to improve the quality and value of event reporting.
Mass-gathering Health Research Foundational Theory: Part 1 - Population Models for Mass Gatherings
TLDR
Consistent definitions of MG populations will support meta-analysis and pooling of data sources internationally, creating a foundation for risk assessment as well as illness and injury prediction modeling, and support methodology for evaluating health promotion, harm reduction, and clinical-response interventions at MGs.
International Consensus on Key Concepts and Data Definitions for Mass-gathering Health: Process and Progress
TLDR
A collaborative initiative to develop consensus on key concepts and data definitions for a MGH “Minimum Data Set” is described, which makes transparent the process undertaken, demonstrates a pragmatic way of managing international collaboration, and proposes a number of steps for progressing international consensus.
Mass-gathering Health Research Foundational Theory: Part 2 - Event Modeling for Mass Gatherings
TLDR
The development of a series of event lenses that serve as a beginning “ MG event model,” complimenting the “MG population model” reported elsewhere are described, addressing a gap in the current body of knowledge.
Improving Data Quality in Mass-Gatherings Health Research
TLDR
The authors propose underlying human, environmental, and logistical factors that may contribute to poor data quality at mass gatherings, and make specific recommendations for improvement through pre-event planning, on-site actions, and post-event follow-up.
...
...

References

SHOWING 1-10 OF 23 REFERENCES
Mass Gathering Medicine: A Predictive Model for Patient Presentation and Transport Rates
TLDR
Several features of the event environment influence patient presentation rates, and that the prediction of patient load at these events is complex and multifactorial, can improve planning and the provision of health care services at mass gatherings.
Mass-Gathering Medical Care: A Review of the Literature
TLDR
Developing an understanding of the variables associated with mass gatherings should be the first step for event planners.
The Development of Conceptual Models for Mass-Gathering Health
  • P. Arbon
  • Medicine
    Prehospital and Disaster Medicine
  • 2004
TLDR
Two preliminary conceptual models are presented as a means to encourage further debate about the dominant influences on the health of people where crowds gather and to promote less superficial forms of analysis of the research data.
Medical Planning for Mass Gatherings: A Retrospective Review of the San Antonio Papal Mass
TLDR
The organizational planning of emergency medical care for the 1987 San Antonio Papal Mass was reviewed and severe environmental conditions with a heat index exceeding 102°F were responsible for 174 cases of heat-related illness.
Practical Solutions for Injury Surveillance at Mass Gatherings
TLDR
The pilot study demonstrated that it was possible to perform “live”, portable injury surveillance during patient presentations at two mass gatherings and well-defined communication systems established for this pilot also enabled early action to rectify hazards.
Mass-Gathering Medicine: A Review of the Evidence and Future Directions for Research
  • P. Arbon
  • Medicine
    Prehospital and Disaster Medicine
  • 2007
TLDR
A review of mass-gathering medicine literature demonstrates the progressive development of knowledge and understanding of the health effects of mass gatherings and the strategies that appear to contribute positively to effective health services delivery during these events.
Forecasting Medical Work at Mass-Gathering Events: Predictive Model Versus Retrospective Review
TLDR
An evaluation of two models that assist in forecasting the number of patients presenting for first-aid services was conducted, finding the Arbon method is particularly useful for events where there is no or limited information about previous medical work.
Half-a-Million Strong: The Emergency Medical Services Response to a Single-Day, Mass-Gathering Event
TLDR
The EMS response to the largest single-day, ticketed concert held in North America: the 2003 “Toronto Rocks!” Rolling Stones Concert is described.
On-Site Physicians at a Major Sporting Event in Nigeria
TLDR
The presence of on-site physicians at a major sporting event resulted in the majority of injuries and complaints being effectively treated on-scene, which reduced the number of hospital referrals and saved time and money for treatment.
Injury Patterns and Levels of Care at a Marathon
TLDR
Marathons should allocate medical resources in favor of the halfway point and the final first-aid station, and resources and medical staff should be moved from the earlier tents to further augment the later first- aid stations before the majority of racers reach the middle- and later-distance stations.
...
...