Making sense of personal health information: Challenges for information visualization

@article{Faisal2013MakingSO,
  title={Making sense of personal health information: Challenges for information visualization},
  author={Sarah Faisal and Ann Blandford and Henry W. W. Potts},
  journal={Health Informatics Journal},
  year={2013},
  volume={19},
  pages={198 - 217}
}
This article presents a systematic review of the literature on information visualization for making sense of personal health information. Based on this review, five application themes were identified: treatment planning, examination of patients’ medical records, representation of pedigrees and family history, communication and shared decision making, and life management and health monitoring. While there are recognized design challenges associated with each of these themes, such as how best to… 
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References

SHOWING 1-10 OF 77 REFERENCES
CareView: analyzing nursing narratives for temporal trends
TLDR
CareView is introduced, a system that utilizes a set of visualization techniques to increase the visibility of temporal trends in clinical narratives and focuses on integrated temporal visualizations of numeric and qualitative records.
PRIMA: A case study of using information visualization techniques for patient record analysis
We have created an application, called PRIMA (Patient Record intelligent Monitoring and Analysis), which can be used to visualize and understand patient record data. It was developed to better…
Exploring LifeLines to Visualize Patient Records
TLDR
LifeLines provide a general visualization environment for personal histories and its use for medical patient records is explored, with a one screen overview of the record using timelines providing direct access to the data.
CareVis: Integrated visualization of computerized protocols and temporal patient data
Patient information needs: pre- and post-consultation
TLDR
Findings from a study of information seeking behaviour by National Health Service patients are presented, revealing that having confidence in health practitioners is one key motiva- tion for information seeking and another is a desire to use health service resources judiciously, efficiently and effectively.
White Paper: Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption
TLDR
This paper summarizes the College Symposium discussions on PHR systems and provides definitions, system characteristics, technical architectures, benefits, barriers to adoption, and strategies for increasing adoption.
LifeLines: using visualization to enhance navigation and analysis of patient records
Sharing medical data vs. health knowledge in chronic illness care
TLDR
Through a study of diabetes patients and the specialists in their care network, the challenges involved in sharing health information from the two perspectives become apparent and opportunities in the design of electronic medical information exchange are found.
Digital libraries' support for the user's 'information journey'
  • A. Adams, A. Blandford
  • Computer Science
    Proceedings of the 5th ACM/IEEE-CS Joint Conference on Digital Libraries (JCDL '05)
  • 2005
TLDR
The study shows that, although digital libraries are supporting aspects of users' information facilitation, there are still requirements for them to better support users' overall information work in context.
MAHI: investigation of social scaffolding for reflective thinking in diabetes management
TLDR
The deployment study with twenty five newly diagnosed individuals with diabetes demonstrated that MAHI significantly contributed to individuals' achievement of their diabetes management goals (changing diet) and inspired individuals to adopt Internal Locus of Control, which often leads to persistent engagement in self-care and positive health outcomes.
...
...