Looking after Keir.

I have just been to Keir’s funeral. There is little sadder than a child’s funeral and I seldom go but I have looked after Keir for 9 years and it was the right thing to do this time. Keir had metachromatic leukodystrophy, initially diagnosed as Charcot Marie Tooth disease, until he lost his speech and mobility over a few months when he was five. Please see… CONTINUE READING