Life expectancy in severe cerebral palsy

@article{Hutton2006LifeEI,
  title={Life expectancy in severe cerebral palsy},
  author={J. Hutton and P. Pharoah},
  journal={Archives of Disease in Childhood},
  year={2006},
  volume={91},
  pages={254 - 258}
}
Cerebral palsy comprises an important component of paediatric and obstetric practice and has major medico-legal implications. [...] Key Method Each case must conform to a specified definition of the syndrome. Notification of all those who die, with their date of death is mandatory. Estimating the probability of survival according to the severity of functional disability requires specific definitional criteria for each severity category and for those categories to be mutually exclusive. Survival is significantly…Expand
Survival of South African children with cerebral palsy.
  • J C Brooks, R D D Campbell, G. Whittaker
  • Medicine
  • South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde
  • 2021
TLDR
To construct survival curves according to the pattern of gross motor skills for CP children in SA and compare these with international studies, data is collected on mortality and functional status for 339 CP children on whose behalf claims for medical negligence had been instituted. Expand
Pediatric Cerebral Palsy Life Expectancy: Has Survival Improved Over Time?
TLDR
The finding in this systematic review is suggestive of aggressive management and treatment of respiratory problems in order to prolong survival of children with CP. Expand
Pediatric Cerebral Palsy Life Expectancy: Has Survival Improved Over Time?
Purpose: The management and treatment of cerebral palsy (CP) presents a challenge despite advancements in nutrition and feeding as well as the management of bronchopulmonary complications andExpand
Chapter 3 Survival , Mortality , and Life Expectancy
Cerebral palsy (CP) is a heterogenous condition, with level of disability ranging from immaterial to profound. In concert with the continuum of level of severity of disability/ independentExpand
Analysis of the medical causes of death in cerebral palsy.
TLDR
Results concur with other published data, i.e. subjects with cerebral palsy die younger than the French general population, and the principal causes of death are respiratory and circulatory problems. Expand
Evidence‐based life expectancy
  • D. Strauss
  • Medicine
  • Developmental medicine and child neurology
  • 2010
TLDR
The authors demonstrated that, as has been well documented for other forms of disability, the degree of preserved motor function is a key factor for longevity and point out that unjustified optimism appears in the literature on spina bifida, too. Expand
Cerebral palsy
TLDR
The use of more appropriate outcome measures encompassing quality of life and participation is helping to deliver treatments which are more meaningful for people with cerebral palsy and their carers. Expand
Survival Prognosis of Japanese With Severe Motor and Intellectual Disabilities Living in Public and Private Institutions Between 1961 and 2003
TLDR
The survival rate among people with SMID housed in public and private institutions in Japan was much worse than that of the general population, and has not improved since the 1960s. Expand
Are Children with Cerebral Palsy and Developmental Disability Living Longer?
A robust literature addresses life expectancy (LE) for children with cerebral palsy (CP) and developmental disability (DD). A Medline data search was completed using the terms CP, DD, LE, survival,Expand
[Cerebral palsy and perinatal asphyxia (II--Medicolegal implications and prevention)].
  • G. Boog
  • Medicine
  • Gynecologie, obstetrique & fertilite
  • 2011
TLDR
Malpractice litigation in obstetric care can be reduced by permanent CTG education, respect of national CTG guidelines, use of adjuncts such as fetal blood sampling for pH or lactates, regular review of adverse events in Clinical Risk Management groups and periodic audits. Expand
...
1
2
3
4
5
...

References

SHOWING 1-10 OF 31 REFERENCES
Life expectancy of children with cerebral palsy.
TLDR
Although a child's approximate survival chances can be assessed from such functional classifications, the manner in which additional information on the child's condition can be used to obtain more accurate survival data is indicated. Expand
Cerebral palsy: why we must plan for survival.
TLDR
Though immobility and severe mental subnormality are the strongest predictors of mortality in children with cerebral palsy, the majority of even the most severely affected patients survive to adulthood, so it is appropriate to plan for their survival by funding and evaluating programmes to maximise health, independence, and quality of life. Expand
Survival in cerebral palsy: the role of severity and diagnostic labels.
TLDR
Survival of the group known to have an additional diagnostic label was significantly lower than that of thegroup with no known label, and remained lower, although not significantly, if only those with severe four-limb involvement were compared. Expand
Effect of severity of disability on survival in north east England cerebral palsy cohort.
TLDR
There appears to be more variation in survival rates associated with severe disability between regions of England, than between north east England, British Columbia, and California. Expand
Effects of cognitive, motor, and sensory disabilities on survival in cerebral palsy
TLDR
Survition in cerebral palsy varies according to the severity and number of functional disabilities and by birth weight, but among low birth weight children, survival declined steadily from 1966 to 1989 after allowing for disability. Expand
Estimating life expectancy in children with neurological disabilities
TLDR
Over the course of the last 20 years with regard to the average life expectancy for people with neurological disabilities, some degree of consensus is evolving as a consequence of there being a reasonably general acceptance of those factors that constrain longevity. Expand
Regional Variation in Survival of People With Cerebral Palsy in the United Kingdom
TLDR
The number and the severity of impairments are the best predictors of survival in young people with CP and after adjustment for variations in level of impairment and birth characteristics, the same does not hold for those who were born in deprived areas. Expand
Long‐term survival for a cohort of adults with cerebral palsy
TLDR
Investigation of long‐term survival and causes of death in adult patients with cerebral palsy finds that survival outlook is good though lower than in the general population, although it shows some indication of rising again after age 50 years. Expand
Epidemiology of cerebral palsy in England and Scotland, 1984–9
TLDR
Registers fill an important gap left by the lack of routine data on the prevalence of disability in children, and the ability to record trends in the prevalence and the severity of the disability should inform those who have responsibility for providing services for children with disabilities. Expand
THE LIFE‐EXPECTANCY OF PERSONS WITH CEREBRAL PALSY
Survival rates for persons with cerebral palsy were calculated using information front a population‐based registry which has been collecting data since 1952. The 30‐year survival rate approximates 87Expand
...
1
2
3
4
...