Leveraging pediatric PROMIS item banks to assess physical functioning in children at risk for severe functional loss

Abstract

Background: Pediatric neuromuscular illnesses often result in decreased health-related quality of life (HRQL), notably in physical functioning. Generic HRQL measures have been developed for use in general populations, but may not adequately assess patients with severe functional loss. To address this measurement gap, we created two custom parent-proxy… (More)

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