Knowledge of and preference for advance care planning by adults with congenital heart disease.

@article{Tobler2012KnowledgeOA,
  title={Knowledge of and preference for advance care planning by adults with congenital heart disease.},
  author={Daniel Tobler and Matthias Greutmann and Jack M. Colman and Mehtap Greutmann-Yantiri and Sydney Lawrence Librach and Adrienne H. Kovacs},
  journal={The American journal of cardiology},
  year={2012},
  volume={109 12},
  pages={1797-800}
}
Congenital heart disease (CHD) is a chronic illness. Few adults with CHD are cured and those with disease of moderate or great complexity remain at risk of premature death. Current adult CHD guidelines recommend that providers encourage their patients to complete advance directives. We evaluated the prevalence of completed advance directives by and the preference for information about life expectancy of outpatients at a large adult CHD program. Two hundred patients with CHD (52% men, 35 ± 15… CONTINUE READING
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