Japanese and American ALS patient preferences regarding TIV (tracheostomy with invasive ventilation): a cross-national survey.

  title={Japanese and American ALS patient preferences regarding TIV (tracheostomy with invasive ventilation): a cross-national survey.},
  author={Judith Godwin Rabkin and M. Ogino and Raymond Goetz and Martin C McElhiney and Jonathan C. Hupf and Daragh Heitzman and Terry D. Heiman-Patterson and Robert Miller and Jonathan Katz and Catherine Lomen-Hoerth and Takashi Imai and Naoki Atsuta and Mitsuya Morita and Takahisa Tateishi and Tsuyoshi Matsumura and Hiroshi Mitsumoto},
  journal={Amyotrophic lateral sclerosis & frontotemporal degeneration},
  volume={15 3-4},
Substantial disparities in TIV utilization rates among ALS patients have been observed, with rates in Japan far exceeding rates in the United States. Our objective was to elicit national preferences and their determinants. We predicted more Japanese than American patients would desire TIV, as would sicker patients, those already using non-invasive interventions, and those with more positive mood and outlook. Patients were enrolled in five U.S. states and six Japanese regions. Eligible patients… CONTINUE READING

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