Is Sharing De-Identified Data Legal? The State of Public Health Confidentiality Laws and Their Interplay with Statistical Disclosure Limitation Techniques
@article{Richardson2015IsSD, title={Is Sharing De-Identified Data Legal? The State of Public Health Confidentiality Laws and Their Interplay with Statistical Disclosure Limitation Techniques}, author={Victor A. Richardson and Sallie Milam and Denise Chrysler}, journal={The Journal of Law, Medicine \& Ethics}, year={2015}, volume={43}, pages={83 - 86} }
The diversity of state confidentiality laws governing public health data presents a significant challenge for public health initiatives. This challenge is further complicated by the array of confidentially laws that are relevant within a state as disclosure and usage standards vary depending upon data holder, type, and source. These laws often have not been updated to address modern confidentiality risks such as unlawful data linkage or breach, leaving many public health organizations without…
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References
SHOWING 1-10 OF 16 REFERENCES
HIPAA privacy rule and public health. Guidance from CDC and the U.S. Department of Health and Human Services.
- Medicine, Political ScienceMMWR supplements
- 2003
The purpose of this report is to help public health agencies and others understand and interpret their responsibilities under the Privacy Rule.
Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization
- Computer Science
- 2009
It is necessary to respond to the surprising failure of anonymization, and this Article provides the tools to do so.
Microdata Protection
- EconomicsEncyclopedia of Cryptography and Security
- 2007
This chapter characterize the microdata protection problem (in contrast to macrodata protection), discussing the disclosure risks at which microdata are exposed, and surveys the main techniques that have been proposed to protect microdata from improper disclosure.
Simple Demographics Often Identify People Uniquely
- Economics
- 2000
In this document, I report on experiments I conducted using 1990 U.S. Census summary data to determine how many individuals within geographically situated populations had combinations of demographic…
Revisiting the uniqueness of simple demographics in the US population
- EconomicsWPES '06
- 2006
A detailed, comprehensive and up-to-date picture of the threat to privacy posed by the disclosure of simple demographic information in the US population based on the most recent census data (the 2000 census) is offered.
V . Ciriani et al . , “ Microdata Protection , ” in Ting Yu and
American Statistical Association: Committee on Privacy and Confidentiality, Key Terms/Definitions (2011), available at <http://community.amstat.org/CPC/AboutUs/KeyTermsDefinitions>
- (last visited February
- 2015
at 291-321, available at <http://spdp
- di.unimi.it/papers/microdata.pdf>
- 2015
Illinois Dep’t of Public Health, 844 N.E.2d 1 (Ill
- 2006