Interventions to address health outcomes among autistic adults: A systematic review

@article{Benevides2020InterventionsTA,
  title={Interventions to address health outcomes among autistic adults: A systematic review},
  author={Teal W. Benevides and Stephen M. Shore and May-Lynn Andresen and Reid Caplan and Barb Cook and Dena L. Gassner and Jasmine M Erves and Taylor M Hazlewood and Margaret King and Lisa Morgan and Lauren Murphy and Yenn Purkis and Brigid Rankowski and Sarah M Rutledge and Savannah P Welch and Karl Wittig},
  journal={Autism},
  year={2020},
  volume={24},
  pages={1345 - 1359}
}
Research has shown that autistic adults have poor health outcomes. We conducted a systematic review to identify existing interventions to address health outcomes for autistic adults and to determine whether these interventions address the priorities of the autistic community. We searched PubMed for articles that included an intervention, a primary health outcome measured at the individual (not system) level, and a sample population of at least 50% autistic adults. Studies were excluded if they… 

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References

SHOWING 1-10 OF 46 REFERENCES
Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project
TLDR
A stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs identified five top priorities for mental health research which should be incorporated by researchers and practitioners in their work with autistic adults.
Evidence Base Update: 50 Years of Research on Treatment for Child and Adolescent Anxiety
TLDR
Findings from this review suggest substantial support for cognitive-behavioral therapy (CBT) as an effective and appropriate first-line treatment for youth with anxiety disorders.
Risk markers for suicidality in autistic adults
TLDR
In autistic adults, non-suicidal self-injury, camouflaging, and number of unmet support needs significantly predicted suicidality, suggesting there are unique factors associated with autism and autistic traits that increase risk of suicidity.
Mindfulness in Individuals with Autism Spectrum Disorder: a Systematic Review and Narrative Analysis
Individuals with autism spectrum disorder (ASD) are more susceptible to stress, anxiety and depression than typically developing individuals. Previous research suggests that mindfulness is effective
“Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum
TLDR
An in-depth understanding of autistic adults’ experiences with healthcare and their recommendations for improving care is obtained to empower patients, adequately train providers, increase the accessibility of the healthcare system, and decrease discrimination.
The health status of adults on the autism spectrum
TLDR
Nearly all medical conditions were significantly more common in adults with autism, including immune conditions, gastrointestinal and sleep disorders, seizure, obesity, dyslipidemia, hypertension, and diabetes.
Brief Report: Feasibility and Preliminary Efficacy of Individual Mindfulness Therapy for Adults with Autism Spectrum Disorder
TLDR
There is evidence for feasibility based on acceptable treatment fidelity and participant satisfaction ratings, and initial efficacy of an adapted mindfulness-based individual therapy targeting ER difficulties for adults with ASD.
Group cognitive behavioural therapy and group recreational activity for adults with autism spectrum disorders: A preliminary randomized controlled trial
TLDR
Cognitive behavioural therapy and recreational activity appear to be promising treatment options for adults with autism spectrum disorder due to the common elements, structure and group setting.
Emergency Department Use Among Adults with Autism Spectrum Disorders (ASD)
TLDR
Mean total ED charges for adults with ASD were 2.3 times higher than for adults without ASD, emphasize the need to examine the extent of frequent ED use in this population.
Medical and Health Problems in Adults with High-Functioning Autism and Asperger Syndrome
TLDR
The focus of this chapter is on those who have historically been identified with “high-functioning autism” or Asperger syndrome, in addition to the current literature on prevalence rates of specific disorders.
...
...