Interventions at the end of life – a taxonomy for ‘overlapping consensus’

@article{Clark2017InterventionsAT,
  title={Interventions at the end of life – a taxonomy for ‘overlapping consensus’},
  author={David Clark and Hamilton Inbadas and Ben Colburn and C Forrest and Naomi Richards and Sandy Whitelaw and Shahaduz Zaman},
  journal={Wellcome Open Research},
  year={2017},
  volume={2}
}
Context: Around the world there is increasing interest in end of life issues. An unprecedented number of people dying in future decades will put new strains on families, communities, services and governments. It will also have implications for representations of death and dying within society and for the overall orientation of health and social care. What interventions are emerging in the face of these challenges? Methods: We conceptualize a comprehensive taxonomy of interventions, defined as… 

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References

SHOWING 1-10 OF 82 REFERENCES

Key stakeholders' experiences and views of the NHS End of Life Care Programme: findings from a national evaluation

TLDR
The authors conclude that many of the views and experiences highlighted in the stakeholder enquiry are reflected in the development and detail of the recently announced End of Life Care Strategy.

Palliative Care Declarations: Mapping a New Form of Intervention

Research challenges in palliative and end of life care

  • I. Higginson
  • Medicine, Political Science
    BMJ Supportive & Palliative Care
  • 2016
TLDR
Although the proportion of funding allocated to palliative care research is historically small, funding organisations in the UK, such as the National Institute for Health Research (NIHR) and the partners within the National Cancer Research Institute (NCRI), are helping to address this.

International palliative care research in the context of global development: a systematic mapping review

TLDR
The review revealed a predominantly observational research approach and few interventional studies were identified, indicating that international palliative care research is a relatively new, but growing field.

Mapping levels of palliative care development: a global view.

Advocacy and activism: missing pieces in the quest to improve end-of-life care.

TLDR
Two kinds of public action that have been effective in improving health care in other areas are described: advocacy and activism for end-of-life care.
...