Information Needs and Concerns of Patients with Inflammatory Bowel Disease: What Can We Learn from Participants in a Bilingual Clinical Cohort?

@article{Pittet2016InformationNA,
  title={Information Needs and Concerns of Patients with Inflammatory Bowel Disease: What Can We Learn from Participants in a Bilingual Clinical Cohort?},
  author={Val{\'e}rie Pittet and Carla Vaucher and Michel H. Maillard and Marc Girardin and Philippe de Saussure and Bernard Burnand and Gerhard Rogler and Pierre Michetti},
  journal={PloS one},
  year={2016},
  volume={11 3},
  pages={
          e0150620
        }
}
BACKGROUND Inflammatory Bowel Disease (IBD) patients are confronted with needs and concerns related to their disease. AIM To explore information expectations of patients included in a national bilingual IBD cohort in Switzerland (SIBDC). METHODS This is a mixed-methods study, comprising 1) a semi-narrative survey sent to 1506 patients from the SIBDC and 2) two focus groups conducted with 14 patients to explore and assess the relevance of the survey's findings. Data collected within the… CONTINUE READING
2
Twitter Mentions

Citations

Publications citing this paper.
SHOWING 1-10 OF 10 CITATIONS

Using the internet to evaluate the opinion of patients with inflammatory bowel disease with regard to the available information.

  • Revista espanola de enfermedades digestivas : organo oficial de la Sociedad Espanola de Patologia Digestiva
  • 2018
VIEW 3 EXCERPTS
CITES BACKGROUND & RESULTS

Forming a support group for people affected by inflammatory bowel disease

  • Patient preference and adherence
  • 2017
VIEW 1 EXCERPT
CITES BACKGROUND

References

Publications referenced by this paper.
SHOWING 1-10 OF 44 REFERENCES

The information needs and preferences of persons with longstanding inflammatory bowel disease.

  • Canadian journal of gastroenterology = Journal canadien de gastroenterologie
  • 2012
VIEW 5 EXCERPTS
HIGHLY INFLUENTIAL