Including older people with dementia in research: challenges and strategies.

  title={Including older people with dementia in research: challenges and strategies.},
  author={Gill Hubbard and M G Downs and Susan Tester},
  journal={Aging & mental health},
  volume={7 5},
This paper examines key challenges and strategies for including older people with dementia in an ethnographic study of quality of life in institutional care settings. The methods of interview and observation are described in relation to meeting four research challenges: verbal communication impairment, memory loss, decision-making capacity, and emotional disposition. A range of strategies for privileging the voice of the person with dementia is recommended which include: using different methods… CONTINUE READING

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