How can the Internet help parents of children with rare neurologic disorders?

@article{Leonard2004HowCT,
  title={How can the Internet help parents of children with rare neurologic disorders?},
  author={Helen Leonard and Linda Slack-Smith and Tim Phillips and Sarah Richardson and Luca D'Orsogna and Seonaid Mulroy},
  journal={Journal of child neurology},
  year={2004},
  volume={19 11},
  pages={
          902-7
        }
}
The objective of this study was to determine the value of an e-mail listserv for parents of children with Rett syndrome, a rare neurologic disorder. This Web-based survey was completed by parents and carers. The setting was an e-mail listserv established by the International Rett Syndrome Association for parents of children with Rett syndrome and other interested persons. The participants included members of the e-mail listserv Rettnet. The main outcome measures were the perceived advantages… CONTINUE READING
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