Health related quality of life in people with hereditary neuromuscular diseases: an investigation of test-retest agreement with comparison between two generic questionnaires, the Nottingham health profile and the short form-36 items.

@article{Boyer2006HealthRQ,
  title={Health related quality of life in people with hereditary neuromuscular diseases: an investigation of test-retest agreement with comparison between two generic questionnaires, the Nottingham health profile and the short form-36 items.},
  author={François Boyer and Isabella Morrone and Isabelle Laffont and Olivier Dizien and Jean Claude Etienne and JL. Novella},
  journal={Neuromuscular disorders : NMD},
  year={2006},
  volume={16 2},
  pages={99-106}
}
The present work attempts to define reproducibility, test-retest and internal consistencies of two standardised tools that measure health related quality of life (HRQoL), specifically as they apply to hereditary neuromuscular disease (HNMD): the Nottingham health profile (NHP) and the medical outcome study 36-item short-form questionnaire (MOS SF-36). A cross sectional survey of 108 hereditary neuromuscular disease patients completed the questionnaires consecutively in the course of… CONTINUE READING

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