Health-related quality of life in patients with neurofibromatosis type 1. A survey of 129 Italian patients.

@article{Kodra2009HealthrelatedQO,
  title={Health-related quality of life in patients with neurofibromatosis type 1. A survey of 129 Italian patients.},
  author={Yllka Kodra and Sandra S Giustini and Luigina Divona and Roberto Porciello and Stefano S Calvieri and Pierre Wolkenstein and Domenica Taruscio},
  journal={Dermatology},
  year={2009},
  volume={218 3},
  pages={215-20}
}
BACKGROUND/AIMS Neurofibromatosis type 1 (NF1), a genetic condition most commonly characterized by the presence of dermal neurofibromas and café au lait macules, has a significant impact upon quality of life (QoL). The study aimed to assess the impact of NF1 on QoL. METHODS A total of 129 patients with NF1 completed the study questionnaires in an Italian academic dermatological centre and a neurofibromatosis clinic at the University of Rome. RESULTS All domains of general-health-related QoL… CONTINUE READING

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